ACPA Family Resources offers information about cleft and craniofacial care. ACPA’s educational materials are written for affected individuals and families by cleft and craniofacial experts.
Download and print ACPA Family Resources below. Educational materials posted here reflect the most recent versions and new resources will be shared as they become available. Printed copies may be ordered through ACPA’s online store.
Life Stages
Article
Introduction to Cleft & Craniofacial Conditions
Fact Sheet
For Parents of Newborn Babies with Cleft Lip/Cleft Palate
Article
Prenatal Diagnosis
Article
Your Baby’s First Year
Booklet
Toddlers & Preschoolers
Booklet
The School-Aged Child
Booklet
As you Get Older (Teen)
Article
Treatment for Adults with Cleft
Treatment & Care
Article
Choosing a Cleft Palate or Craniofacial Team
Article
Preparing for Surgery
Booklet
Treatment Options for Better Speech
Booklet
Help with Hearing
Booklet
Bone Graft Surgery
Booklet
Submucous Cleft Palate
Fact Sheet
Information about Surgical Scars
Fact Sheet
Neonatal Cleft Lip & Palate: Instructions for Newborn Nurseries
Fact Sheet
Dental Care for a Child with Cleft Lip and Palate
Fact Sheet
Replacing a Missing Tooth
Fact Sheet
Speech Development
Feeding Resources
Article
Feeding Your Baby
Video
Feeding Your Baby Videos
Fact Sheet
What about Breastfeeding?
Fact Sheet
Contact Information for Manufacturers of Cleft Nursers
School-Aged Support
Booklet
The School-Aged Child
Booklet
As you Get Older (Teen)
Letter
Letter to the Teacher of a Child with Cleft
Fact Sheet
Help with Social Situations
Craniofacial Syndromes & Conditions
Fact Sheet
Information about Crouzon Syndrome (Craniofacial Dysostosis)
Fact Sheet
Pierre Robin Sequence/Complex
Booklet
Treacher Collins Syndrome (Mandibulofacial Dysostosis)
Fact Sheet
Positional Plagiocephaly (Head Shape Deformity)
Other Topics
Article
Frequently Asked Questions About Cleft Lip & Cleft Palate
Booklet
Genetics & You
Letter
Letter to the Parent of a Child with a Cleft
Fact Sheet
Information about Financial Assistance
Article
Medical Insurance & Payment Information
Article
Cleft & Craniofacial Support Organizations
Fact Sheet
Special Considerations for Speech & Language Development for the Child Who is Adopted Internationally
The video, Feeding Your Baby and acpacares.org/resource-center/ do not provide medical advice. The contents of the “Feeding Your Baby” video, such as text, graphics, images, feeding methods and supplies, are for informational purposes only. The American Cleft Palate Craniofacial Association (ACPA) does not recommend or endorse any of the products, procedures, opinions or other information that may be mentioned.
The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician with any questions you may have regarding a medical condition. If you think you may have a medical emergency, call 911 immediately.
ACPA authorizes you to view or download copies of the material from www.acpacares.org solely for your personal, noncommercial use.
The content is protected by copyright under both United States and foreign laws. Title to the content remains with the ACPA or its licensors. Any use of the content not expressly permitted by these Terms and Conditions is a breach of these Terms and Conditions and may violate copyright, trademark, and other laws. Content and features are subject to change or termination without notice in the editorial discretion of ACPA. All rights not expressly granted herein are reserved to ACPA and its licensors.
If you violate any of these Terms and Conditions, your permission to use the content automatically terminates and you must immediately destroy any copies you have made of any portion of the content.
The use of the information presented in this video and additional content on www.acpacares.org is at your own risk.
When using the ACPA or ACPA Family Resources website, information will be transmitted over a medium that may be beyond the control and jurisdiction of ACPA and its suppliers. Accordingly, ACPA assumes no liability for or relating to the delay, failure, interruption, or corruption of any data or other information transmitted.
The ACPA’s video, “Feeding Your Baby”, and website and the content are provided on an “as is” basis. The ACPA, its licensors, and its suppliers, to the fullest extent permitted by law, make no warranties or representations, either express or implied, of any kind concerning the accuracy, suitability or safety of the information contained in this video or on the ACPA websites or any linked site for any purpose.
In no event shall the ACPA, its licensors, its suppliers, or any third parties mentioned on the ACPA websites be liable for any damages (including, without limitation, incidental and consequential damages, personal injury/wrongful death, lost profits, or damages resulting from lost data or business interruption) resulting from the use of or inability to use the ACPA website or the Content, whether based on warranty, contract, tort, or any other legal theory, and whether or not the ACPA, its licensors, its suppliers, or any third parties mentioned on the ACPA website are advised of the possibility of such damages. ACPA, its licensors, its suppliers, or any third parties mentioned on the the ACPA website are not liable for any personal injury, including death, caused by your use or misuse of the Site, Content, or Public Areas (as defined below).
You agree to defend, indemnify, and hold ACPA, its officers, directors, employees, agents, licensors and suppliers, harmless from and against any claims, actions or demands, liabilities and settlements including without limitation, reasonable legal and accounting fees, resulting from, or alleged to result from, your violation of these Terms and Conditions.