National Support Resources

FACES–The National Craniofacial Association
Provides support to people with craniofacial differences through newsletters, information packets, and financial assistance for non-medical costs.

Children’s Craniofacial Association
CCA addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions.

Craniosynostosis and Positional Plagiocephaly Support (CAPPS)
Online support group and information for parents of children with craniosynostosis and positional plagiocephaly.

Crouzon Support Network
Online group for individuals and families affected by Crouzon Syndrome and other craniofacial anomalies.

Moebius Syndrome Foundation
Provides information and support to individuals with Moebius syndrome and their families.

For 70+ years, myFace has been dedicated to changing the faces – and transforming the lives – of children and adults with facial differences by providing access to holistic comprehensive care, education, resources and support that pave the way for better outcomes.

Pierre Robin Network
A network of families whose children have been diagnosed with Pierre Robin Syndrome.

“Teeter’s Page”
An online support and information source for individuals and families affected by Apert Syndrome.

Treacher Collins Foundation
An organization of families, individuals and medical professionals who are interested in developing and sharing knowledge and experiences about Treacher Collins Syndrome and related conditions.

Velo-Cardio-Facial (VCFS) Educational Foundation
The VCFS Educational Foundation is a non-profit organization that provides support and information to individuals and families who are affected by Velo-Cardio-Facial syndrome.