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ACPA Family Resources offers information about cleft and craniofacial care. ACPA’s educational materials are written for affected individuals and families by cleft and craniofacial experts.

Download and print ACPA Family Resources below. Educational materials posted here reflect the most recent versions and new resources will be shared as they become available. Printed copies may be ordered through ACPA’s online store. Orders can also be submitted using the store order form.

Life Stages

Article

Introduction to Cleft & Craniofacial Conditions

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Fact Sheet

For Parents of Newborn Babies with Cleft Lip/Cleft Palate

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Article

Prenatal Diagnosis

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Article

Your Baby’s First Year

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Booklet

Toddlers & Preschoolers

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Booklet

The School-Aged Child

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Booklet

As you Get Older (Teen)

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Article

Treatment for Adults with Cleft

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Treatment & Care

Article

Choosing a Cleft Palate or Craniofacial Team

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Article

Preparing for Surgery

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Booklet

Treatment Options for Better Speech

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Booklet

Help with Hearing

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Booklet

Bone Graft Surgery

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Booklet

Submucous Cleft Palate

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Fact Sheet

Information about Surgical Scars

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Fact Sheet

Neonatal Cleft Lip & Palate: Instructions for Newborn Nurseries

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Fact Sheet

Dental Care for a Child with Cleft Lip and Palate

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Fact Sheet

Replacing a Missing Tooth

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Fact Sheet

Speech Development

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Feeding Resources

Article

Feeding Your Baby

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Video

Feeding Your Baby Videos

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Fact Sheet

What about Breastfeeding?

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Fact Sheet

Contact Information for Manufacturers of Cleft Nursers

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School-Aged Support

Booklet

The School-Aged Child

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Booklet

As you Get Older (Teen)

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Letter

Letter to the Teacher of a Child with Cleft

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Fact Sheet

Help with Social Situations

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Craniofacial Syndromes & Conditions

Fact Sheet

Information about Crouzon Syndrome (Craniofacial Dysostosis)

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Fact Sheet

Pierre Robin Sequence/Complex

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Booklet

Treacher Collins Syndrome (Mandibulofacial Dysostosis)

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Fact Sheet

Positional Plagiocephaly (Head Shape Deformity)

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Other Topics

Article

Frequently Asked Questions About Cleft Lip & Cleft Palate

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Booklet

Genetics & You

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Letter

Letter to the Parent of a Child with a Cleft

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Fact Sheet

Information about Financial Assistance

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Article

Medical Insurance & Payment Information

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Article

Cleft & Craniofacial Support Organizations

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Fact Sheet

Special Considerations for Speech & Language Development for the Child Who is Adopted Internationally

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Terms & Conditions

The video, Feeding Your Baby and acpacares.org/resource-center/ do not provide medical advice. The contents of the “Feeding Your Baby” video, such as text, graphics, images, feeding methods and supplies, are for informational purposes only. The American Cleft Palate Craniofacial Association (ACPA) does not recommend or endorse any of the products, procedures, opinions or other information that may be mentioned.

The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician with any questions you may have regarding a medical condition. If you think you may have a medical emergency, call 911 immediately.

Use of Content

ACPA authorizes you to view or download copies of the material from www.acpacares.org solely for your personal, noncommercial use.

The content is protected by copyright under both United States and foreign laws. Title to the content remains with the ACPA or its licensors. Any use of the content not expressly permitted by these Terms and Conditions is a breach of these Terms and Conditions and may violate copyright, trademark, and other laws. Content and features are subject to change or termination without notice in the editorial discretion of ACPA. All rights not expressly granted herein are reserved to ACPA and its licensors.

If you violate any of these Terms and Conditions, your permission to use the content automatically terminates and you must immediately destroy any copies you have made of any portion of the content.

Liability of the ACPA & its Licensors

The use of the information presented in this video and additional content on www.acpacares.org is at your own risk.

When using the ACPA or ACPA Family Resources website, information will be transmitted over a medium that may be beyond the control and jurisdiction of ACPA and its suppliers. Accordingly, ACPA assumes no liability for or relating to the delay, failure, interruption, or corruption of any data or other information transmitted.

The ACPA’s video, “Feeding Your Baby”, and website and the content are provided on an “as is” basis. The ACPA, its licensors, and its suppliers, to the fullest extent permitted by law, make no warranties or representations, either express or implied, of any kind concerning the accuracy, suitability or safety of the information contained in this video or on the ACPA websites or any linked site for any purpose.

In no event shall the ACPA, its licensors, its suppliers, or any third parties mentioned on the ACPA websites be liable for any damages (including, without limitation, incidental and consequential damages, personal injury/wrongful death, lost profits, or damages resulting from lost data or business interruption) resulting from the use of or inability to use the ACPA website or the Content, whether based on warranty, contract, tort, or any other legal theory, and whether or not the ACPA, its licensors, its suppliers, or any third parties mentioned on the ACPA website are advised of the possibility of such damages. ACPA, its licensors, its suppliers, or any third parties mentioned on the the ACPA website are not liable for any personal injury, including death, caused by your use or misuse of the Site, Content, or Public Areas (as defined below).

Indemnity

You agree to defend, indemnify, and hold ACPA, its officers, directors, employees, agents, licensors and suppliers, harmless from and against any claims, actions or demands, liabilities and settlements including without limitation, reasonable legal and accounting fees, resulting from, or alleged to result from, your violation of these Terms and Conditions.

Support ACPA

ACPA supports, educates and encourages families at critical points in their cleft and craniofacial journeys. Your gift supports ACPA as we create a world where individuals with cleft and craniofacial conditions thrive.

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